Showing posts with label Painsomnia. Show all posts
Showing posts with label Painsomnia. Show all posts

Wednesday, April 9, 2014

Depression and Chronic Illness, Aha!

Depression. It's an ugly word. The word itself makes you think of cloudy skies and sad commercials. You just thought of one didn't you?

Depression and anxiety can sneak up behind you and lurk in your shadow. You don't even notice the Big D standing behind you slowly cloaking you with a film over your heart.

Therein lies the problem.You are already in pain, you are already fighting fatigue, you are already feeling down, so how can you possibly know that you're depressed?  Am I feeling down because I'm in pain or in pain because I'm feeling down? When pain levels are high so are anxiety levels. You might as well not expect me to concentrate or carry a conversation because as much as I truly want to talk...my brain is busy doing things that are out of my control.
Many (not all) physicians are quick to pass out antidepressants at the first sneeze. I denied them for years. Then when I finally went in open minded I said proudly "only because it's for pain". Still denial. But I tried them, because I was assured they also help with pain and also I can't take narcotics and function at work. Then I gained 20 pounds which didn't help my joints, felt loopy all the time and more tired than before I started them. So, in my further clouded moment I told the Doc he must be wrong. I'm doing this without these meds. And I did, I went gluten free (for a short period of time) finally got biologics, took my vitamins and started feeling better-well at least manageable. I requested vitamin level blood work. I was extremely B & D deficient and completely convinced that would solve the problem. And it did help, for awhile. Then after 2 years when the first biologic stopped working, Big D camped outside my front door with the boogeyman and the werewolf and all other scary nightmare creatures. I ignored them. I knew they were coming to talk to me. To put that warm blanket of deceit over me. And without any treatment or even admitting to myself there was an issue. I opened the door myself. 
You see, depression has several stigmas and I was prideful. I believed those stigmas or at least worried about people that did and I felt shame.  Shame about having this illness, shame about things I wasn't doing at home, shame about taking things away from my husband and son. Shame that I might be depressed and someone might know.

I.
Was.
Wrong.

Now, I know that there are many types of depression and anxiety. There's even more treatment options. I'm not a licensed medical practitioner, but I can put it here for you in layman's terms when it comes to pain and depression working with eachother.
Depression hurts. Yup, we've all heard that commercial and I am not advertising for them. It's unfortunately the truth. Especially for those already in pain. For those that didn't get the instruction manual...its lovingly referred to as painbrain.
Painbrain is caused by your body and your mind fighting eachother (or maybe a strongly worded discussion). Your body is already sending signals to your brain about pain. Because your pain doesn't go away, your body is starting to send stronger messages via your hormones (adrenaline). Your brain has to listen now. But its getting so many signals and warnings that sometimes the circuits overload and you lose some concentration as well. The body fatigues as it would naturally after fighting an illness.
This also leads to painsomnia. When you can't sleep due to pain and the fight or flight signals your mind is receiving from those warning signals.
I didn't recognize it as the Big D. I was losing interest in everything.  I didn't want to leave the house. My pain levels were off the charts and if I made it through a work day all I wanted to do was sleep. Denial even then.

So there in the middle of my denial, I had an AHA! moment. Recognizing depression and anxiety as a separate yet connected issue with pain is important.  I went to talk to my doctor. Who also asked alot of questions and spent a great deal of time helping me understand the link. Getting over the stigma was the hardest but once I found the tools I needed to connect the dots, I was able to resign myself for treatment options.

Depression, part Duh! To be posted later this week.

Wednesday, April 2, 2014

Let me Introduce Myself

So where to start? Right at the beginning, I suppose. Or maybe not. I guess the hard part is which beginning-not the story of my life but the beginning of my battle with arthritis? 

Well after my grandiose ideas of how perfect this blog could be and how I can help so many people find something positive, I had a bad day. A bad pain day. LIGHTBULB! 
I have spent many sleepless nights researching and following other blogs and wallowing in my own puddle of self pity. Days that I cursed other bloggers for being so darned happy. Not that I wanted them to hurt the way I did or even hurt at all. I just couldn't look towards a brighter future because I wasn't finding any relief myself. Couldn't imagine how anyone who claims to have a horrible pain could possibly post such happy, "feel good" messages. 

 My end goal here is to promote something positive. Just not over the top hallmark card positive. Realistically, though as someone who never knows what to expect until she wakes up-this girl may vent a frustration from time to time. 

My experience is with Rheumatoid Arthritis, Psoriatic Arthritis and Fibromyalgia.  I am not a doctor, a medical professional or even an expert on autoimmune diseases but feel as though I should have a degree in pain with a doctorate in painsomnia.  I can't help diagnose but I can give you my story, my background and any method to help alleviate chronic pain is worth trying (in my book).

After my first flare, time stood still. Blood work and nsaids and blood work and prescriptions and blood work and waiting.And then more waiting. And then the Rheumatologist. X-rays, MRI's, CT Scans, all while trying to work and have a family. And then finally, a diagnosis, or two? or three? That's the first uphill struggle with autoimmune related diseases and conditions. There's no set answer and everyone's pain is different.  

So I won't bore you with every medicine, and every detail of my chronic pain story but I will share what works for me on any particular day. 
Whew! Now all that being said. No matter what kind of chronic pain you suffer, I hope that you maybe find some comfort here. 
And hopefully there won't be so many cheeky inspirational messages..ok maybe a few. And no major rants..only vented frustrations. But obtainable tips and tricks. Ideas and thoughts about living a REAL life with pain. 

Gentle thoughts
-Ryss